My Butterfly Life
You deserve the best life possible, this space is for you
I want to give voice to your story. If you are interested in sharing your EB experience, click here to find how.
In this section you will find articles about products that suit well to EB skin, EB routine and lifestyle for EB people.
Why should you consider being an entrepreneur if you are dealing with EB disease? I deliver you my reasons!
EB around the world
New EB Baby Hacks every week
© Debra of America
EB Connect: the new EB Community Platfom
I help EB people feeling a little better
My butterfly Story
My name is Cindy, and since I moved to Spain 3 years ago, I realized that my story and experience, with almost 30 years thriving with DDEB, could help other young people, maybe inspire them.
My Butterfly Life, is a confidence space, I will share with you EB hacks, stories, not only mine, but other people with EB that are having a good life.
This is a space for everyone who’s concerned by EB and need confort and help, it’s a space for you, for your family and I hope that you will feel good here.