Your story can change a life
tell your story
Are you thriving with EB? And you would like to tell your story? This is the right place!
There are other people over the world, suffering with EB and they need your help.
Tell us your daly life, how you manage to live with EB, share with us some hacks that works on you and make you fell better.
You don’t speck english? No worries. This is an international space, you can speak on your mother tongue we will share in the original language and with an english translation.